Wednesday, March 28, 2012


Hope is some extraordinary spiritual grace that God gives us to control our fears, not to oust them.  ~Vincent McNabb

Life has been a roller-coaster of  emotions.  Trying to balance work, family, and doctor's appointments started to become a bit overwhelming.  Keeping busy has been a blessing because then we don't dwell on the Tiny Princess's condition, but at the same time it's a curse.  A curse that we may be ignoring precious moments with her that could very well be lost some day.  

The Tiny Princess has being doing very well.  She is standing and desperately trying to walk.  She laughs and squeals often, and it melts my heart.  It's been a delight spending as much time as I can with her.  Work has kept me away from home more then I would like which caused me to be scared and worried.  Worried that I have been ignoring the seriousness of her condition because she is doing so well.  

We visited the Cardiologist in San Antonio, and he is now my hero.  This poor man had to sit and listen to me babble about my fears, my confusion, and my worries.  He did all of this while I teared up and so did he.  We left this appointment feeling like we were in control, even just a little bit.  Her heart looks like it is getting smaller.  The Doctor of course didn't want to get our hopes up too much, but he said that maybe it was getting better.  The Tiny Princess even put on weight!  

We found a forum for parents with The Tiny Princess's condition and it has been a blessing.  There is a child on there that beat all the odds and his heart slowly got better.  Could this be the case for the Tiny Princess??? I hope we keep making the doctors look at her in confusion.  Confusion on why she is doing so well when all their books say that she shouldn't be.  My little fighter. 

If it wasn't for the love, support, and prayers from our friends and family, I know we would be lost.   Life is a gift and Ella is our angel.  We are the luckiest family in the world to have this beautiful angel that we get to hold, kiss, and snuggle.  Right now I could not ask for more :)