Thursday, April 12, 2012


We gain strength, and courage, and confidence by each experience in which we really stop to look fear in the face... we must do that which we think we cannot.
Eleanor Roosevelt

A little hiccup is all it takes.  Something so small that can only be seen under a microscope can cause the scale to no longer tip in our favor.  Our Tiny Princess hasn't been feeling well lately.  She caught a stomach virus, and her fragile body is having a hard time fighting it off.  The progress she had gained these past couple of months has been stripped away so quickly.  She's lost weight.  Her heart function has declined.  

My heart breaks while fear fills the cracks.

Our Tiny Princess still fights.  

The amazing doctor in San Antonio keeps such a great eye on her, and stays completely honest with me.  We went in yesterday to make sure she wasn't declining.  She looks fine.  She plays. Her valves are not leaking.   She laughs.  Nothing looks abnormal until you look inside her body.  The doctor looked at her heart with concern, fear, and confusion.  Then he looked up at me and said the words I feared. Her heart function has decreased.  Not a lot, but the worry is all over his face.  He left to talk to another doctor in the office, and to look at blood work from last week. 

I prepared for another hospital stay.  I sent a text to my husband to come quickly. The doctor came back in, and said we just need to keep an eye on her and increase her medication to give her heart a break.  They want to see if she can fight this off.  My Tiny Princess can fight this off.

My husband is so good with her.  He is nursing her back to health.  He is making sure she has everything she needs to fight.  One more day of watching to see if she needs some help. I think we will make it.  She is my little fighter after all.  One more battle won.  Now to prepare for many more, and to tip the scale back into our favor.