"Therefore do not worry about tomorrow, for tomorrow will worry about itself.  Each day has enough troubles of its own." Matthew 6:24, The Bible

Tomorrow is finally the day for her biopsy.  It has been a very long wait due to the fact that we are trying to schedule an eye surgery at the same time. The eye surgery seems like a needless procedure to some people because of her condition, but we are preparing her for a very long life.  We want her to be able to see as normally as possible when she gets older.  We treat her like she will live until she is old and gray.  I will admit that I assumed this would not be a difficult task because all the doctors are in the hospital, why can't they just do two surgeries at the same time?  Apparently this is very hard to coordinate due to different operating days for the surgeons, finding a cardiac anesthesiologist, and finding an OR with the right equipment to preform both surgeries.  

Another difficult task was finding a surgeon willing to preform the muscle biopsy.  From what I can gather, this is a simple procedure where they take a small amount of muscle from the leg.  However, it's the condition of her heart that is being questioned.  One nurse admitted that fragile hearts like Ella's scare most nurses and doctors that are not cardiologists.  

Hearing this really engraved in my mind how incredibly lucky we really are that Ella is doing so well.  I've heard it time and time again, people look at her chart and ask, "How long have you been on the transplant list?"  When we tell them we aren't, they look at Ella in shock.  "She's doing great right now.  She's a fighter.  There is not a need to put her on the list when she would be at the very bottom."  That is what I tell people with a smile.  I'm so grateful to be able to have every moment I do with her knowing we are on borrowed time.  I'm very lucky and blessed knowing that there are so many other parents out there that don't get the time we have with her.  So many parents would kill for just one more day, and we have had close to a year.  I thank God every day we have her.  We live each day to the fullest that we can.  We play with her, cuddle her, and love her every moment. 

She is our Tiny Princess Warrior! Hear her squeal!