“It's not the size of the dog in the fight, it's the size of the fight in the dog.”
― Mark Twain

Our Tiny Princess has been through a lot these past couple of months.  Her g-tube placement surgery was a success, and we only had to spend 4 days at the hospital!  We are very happy that we did the surgery at TCH because it allowed us to see how the hospital works up there.  I never would have guessed that things would be done so much differently, but I'm glad we were able to see things through the eyes of parents that did not have a child there because of a life threatening situation.  We also learned that Our Tiny Princess does not have EoE, or Celiac disease.  The information was a little frustrating at first, but with some new therapies, Ella is now working on eating more types of foods which would not have happened if we had not learned of her misdiagnosis.

Ella was doing pretty good until about a month after Ella's g-tube placement she started to get sick.  Even with the constant ER visits, and phone calls to the numerous doctors, she ended up having another hypoglycemia episode.  Her sugars were below 10, and they were having a really hard time bringing them up.  Thankfully she did not experience seizure activity with this episode like she did last time, but it was still a very scary situation.  She ended up staying for about a week and a half while the doctors were trying to find out why they could not keep her sugar levels normal.  Ella will be seeing another doctor to run some more tests, and hopefully come up with some answers for the hypoglycemia next Month.

Our Tiny Princess was also seen by TCH again for our cardiac follow up.  Dr. Jeewa had the chance to visit with us this time, and could not believe how much she has grown and developed!  Her heart function is still sitting at the same numbers we have seen for about 2 years now, and he was very impressed.  They were not very impressed by her weight loss, but we have been in contact with a dietitian, hoping to have some more success with her weight gain.

As the months go on, Our Tiny Princess proves that she is a fighter with her disease.  As far as this little princess knows, she is your typical 2 year old.  She fights with her sister, and friends, knowingly gets into trouble, and never lets her size be an issue.